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My Parkinson's Journey

In which Terri shares a humorous look at her journey with Parkinson's disease and Dystonia:

For me, illness and health are not opposites but exist together. Everyone has something that is challenging to them. Mine just simply has a recognizable name. My life will take a different path because of this but that's okay. Everyone has changes in their lives that create their path.  I'm learning how to enjoy whatever path I'm on.

The Cool Factor of Parkinson's Disease

Terri Reinhart

One of those less than reputable news sites, which from here on out I will refer to as "The Weekly Wipe", recently published an article about Michael J Fox. They said he was "losing his battle" with Parkinson's and described him as a "shell of his former self". Geez. This article is filled with all sorts of misinformation about Parkinson's disease, not to mention misinformation about Michael.

Just because someone isn't on top of their game one day doesn't mean they're almost ready for a wheelchair. Parkinson's disease doesn't automatically lead to dementia. And, for crying out loud, PARKINSON'S ISN'T A BATTLE TO BE WON OR LOST, IT'S PART OF WHO WE ARE AND OUR CHALLENGE IS TO LEARN HOW TO LIVE WELL!  We're not fighting to find a cure, we're searching for a cure and celebrating each step we make. If we look at it as a battle, we've all lost. I refuse to live my life fighting. I'd much rather be dancing.

The battles out there have to do with all the misconceptions and misinformation that is spread around when someone like Michael J Fox says he doesn't want to talk to you folks at The Weekly Wipe. When it comes to those battles, it doesn't matter whether our meds are on or off, or whether or not it's a good day.  We'll still kick your ass. 

And Michael, you've allowed us to get to know you with all the ups and downs of your journey. You've added a huge cool factor for PD. I mean, really, PD can be a challenge, but hey, I have something in common with Michael J Fox. How cool is that? Regardless of what challenges may hit on any given day - or moment - you're still cool. 

Okay, the cool factor went up a few more notches when I found out Billy Connolly also has PD. Wow. I've got something in common with Michael J Fox AND Billy Connolly.