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My Parkinson's Journey

In which Terri shares a humorous look at her journey with Parkinson's disease and Dystonia:

For me, illness and health are not opposites but exist together. Everyone has something that is challenging to them. Mine just simply has a recognizable name. My life will take a different path because of this but that's okay. Everyone has changes in their lives that create their path.  I'm learning how to enjoy whatever path I'm on.

Alternative Energy to Power DBS Pacemaker

Terri Reinhart

Patrick is working on his alternative energy drawings for the DBS Pacemaker.  And his first one is below!

As a teaser, you might want to think about these other possibilities:

Solar power : Perhaps a solar panel on top of our heads?

Wind power : We could bring back the old propeller beanie caps, only with a wind turbine for harnessing the wind power.

Stationery bicycle power : If they can power a blender this way, we should be able to power ourselves, too. After all, exercise is good for us, right? What better motivation to keep exercising?

Long extension cord to recharge at night ? Or, as Patrick's picture shows, in a pinch plug ourselves in during the day. The Frankenstein bolts on the sides of our neck might have to become standard.

Zipper closure where the pacemaker is inserted so patient can change battery : Hey, if I run down, it would be nice to just stop and pick up a spare battery.

Jumper cables to hook onto another person with DBS or other power source : Just on the off chance that you do run down in the middle of nowhere but have another source of power, could we jump start?

Shut mom down now and then to conserve ener g y : Don't say it. Mom already shuts down now and then to conserve energy.

And, if replacing batteries is too much of a hassle:

Craig’s list or Ebay: “One mom, well used, batteries not included.”

More pictures from Patrick to come. I've bribed him with chocolate chip cookies.

 

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categories coping, humor, parkinson's disease